2RMine

2 years ago, on April 17th, 2008, My son Samuel was diagnosed with autism. 3 months later, my son Myles was diagnosed with autism. I don't like to capitalize that word. It makes it too important. I like to capitalize "Florida" or "Tennessee". I like to capitalize "The Steelers". I like to capitalize "Banana Split" and "The Bible".

I don't capitalize autism.

Don't get me wrong. I know it matters. I know it influences my day to day operations. But it is not the most important quality that identifies "The Boys".


Last week, Sam brought Joy a DVD with no pictures, just words on it. He said "I want Wee-Poo". Yeah, you guessed it...It was a Winnie the Pooh Movie.

Myles asked Joy "Would you like to play with my trains?". It was the first time he has asked her to imagine play with her. Ever.

And when they were in the backyard, Myles hollered out "Sammy, be careful!", then ran to the slide and helped him climb up it backwards (oh, like you never did that as a kid !?)

We recently went on a walk to support autism research. And we saw other families there. And yeah...OK...it is important. Research leads to answers which leads to a cure. We all know that.

But 'The Boys" are not defined by autism. They are defined by smiles, dirt, trains, spaghetti.

The are defined by Love.

One in 110 are diagnosed with autism.

We are Once in a Lifetime

Played a game with Sam tonight before bed. I say "I"...then he says "love"...then we both say "YOU". And there is much giggling afterwards. I confess, I didn't come up with this game, the Joyfulness started it. But again, it is great to see Sam interacting with us so well.

Speaking of interacting, check out the dude helping me and PawPaw with the dishwasher.

Myles has been quite the daddy's little helper lately. Today he helped me bag leaves and rake and...yes, that's right....raking leaves in April. I have 4 oak trees and they are very big, OK?

Anyway...back to Myles. He has also taken to using my tools. He especially likes the table saw and nail gun....I'm just KIDDING! But he does like the screwdriver, and the pliers, and the mallet. And somehow he mixes that with cars, and animals, and trains. I'm totally loving the "imaginative" play.

You know, sometimes I wish I had a little Polaroid (am I dating myself?), so that I could take snapshots of moments with my family. Do you ever find yourself looking at the ones you love and just going "click". As the song goes "It's no accident we're here...we are once in a lifetime".

I challenge you this next week to take some pictures with your Polaroid eyes. If you look around you will see the moments. With your children or with the ones you love.

Just remember to say "click".

Sam at the Children's Science Museum. Wish i could have been there. Good to see him so inquisitive.






Who doesn't like a good wind tunnel ??

You rock Sam !!!

Update

Ok, so...it's been a while. And I have used far to many excused about staying away. I think I am still recouping from the holidays. Ok...not a good excuse. The pressure of updating daily? Hmm...maybe. I think we will shoot for once a week. So every Sunday morning, my friends should be able to get an update on my family.

Also, I think I have be come too accustom to the RAOC in my life. And that's just not right! There has been so many things going on these past few months, it is hard to know where to start. But I will start with Sam.

I am being just absolutely blown away with Sam's progress on his verbal skills. A quick recap: We didn't know for sure if Sam was going to have any vocabulary (check that...WE knew, some doctors didn't). When he finally did begin to say a few words, it seemed that he was not progressing.

Example: Sam would say "I want Book.", when he wanted a book, when he wanted a drink, when he wanted to play, when he wanted to eat." Etc.

But in the last few weeks, Sam has started making the connection: "I want drink".

OK, OK, we're not talking Shakespeare here. But bottom line, He is TALKING !!!

And then there is Myles, who had a tough go at school last fall. He has since switched classes, and has a somewhat slower pace. And what a difference it has made. Teacher says he has great hand-writing, and uses the scissors exceptionally well. Myles is beginning to say some spontaneous questions like "Play with me" and "I would like a blanket".

Yes, there is still much prompting. But the other day I caught myself outside with Myles having a CONVERSATION. I think we were talking about our favorite foods.

So here's the deali-o: My boys have exceptional talents and exceptional challenges. But everyday they are showing us random acts of cool.

Don't over look the things your children do. What may seem ordinary to you, is extraordinary to my family.

More next week !!

Men of Steel

I am Superman. I have overcome obstacles that were insurmantable. I talk now, though not alot. When I say something it is important. I try harder than other children, because it does not come easy for me. But I am Superman. I have the will to try new things, new foods, and new textures.

I am not scared of anything (except maybe the noise of the food processor). I see the world differently than you do. I look at things in a different angle. I do not see the world in typical fashion. I am Superman. I give tremendous hugs that last an infinite amount of time, and I will kiss you and say "I love you", if you ask me too. The doctors thought it may not happen, but I am Superman.

And every day I get stronger. This world is not my home and if you lived the life I live, you would be a better person. I take nothing for granted. I enjoy everything I see and touch and smell. And I will never be typical, I will never be ordinary. I am Superman.

I am Superman. I have no limits. I write numbers and letters, and can read. I am smart. I know my planets and can sing my ABC's backwards. I remember everything I read. I love cars and trucks and animals and dinosaurs and pizza and apple juice and Impressionist Art.

I am no different than anyone else. I will always be different from everyone else. I have no fear, except maybe spiders.

I play hard, I jump on the trampoline. I love to wrestle and I will laugh at you after I pin you. And then I will help you up. One day I will be a leader of men. I am Superman...

I want to ride my bicycle

Balance...check

Hand Eye coordination....check

problem solving...check

muscle development....check

Hope for tommorrow....double CHECK !!!

Hope

A lot has been going on around here lately. We started school and Myles has been learning the ropes at Kindergarten. Sam is still in preschool, but he also has lots to learn. The teachers are pushing our boys to be better and we so appreciate it.

There have been so many little (huge) random acts this month it is hard to focus on just one thing. Myles has struggle some with behavior issues, but his academics have excelled. He is doing great at writing his name, his numbers, and his letters.


He likes so many new things: The planets (you know there's only eight now??). Books and cars and trains are things he has always enjoyed, but he doesn't get "fixated" on any one thing.

Sam has been much more receptive verbally. He is really interested in his shapes now, and can even say their names. He gets excited when he sees familiar faces and will say "Hi" and "Bye" when prompted.

So my random act of cool right now is what my boys have given me: Hope. And they give it to me daily.

End of Summer

OK, OK, so it's not really the end of summer just yet. But both boys are back in school now, and it is starting to cool off a little here. That doesn't mean you can't still have a little fun in the pool though.





What I like most about this photo is that it shows my boys actually playing together and liking it. I know...I'll use this as blackmail later. For a long time, it was hard to get the boys to interact without us suggesting it. This summer we have definitely seen an improvement in that.

Whether it is wrestling, or hugging or just making each other laugh...those are things we don't take for granted. When we see those things happen.....randomly.....well, that's just cool.

School Day

So today was the first day of kindergarten for Myles. I don't think the poor guy new it was coming. But he did fine. As far as I know. I mean, I didn't get any calls at work. And they said he can come back tomorrow.

Seriously, he is in an excellent class and has a very experienced teacher. He will be focusing a lot on "playing well with others". Sounds like a class I could use..

Joyfullness said that Sam did excellent at preschool. He went right in, gave mom a kiss and a wave good-bye, and started playing. He seemed very happy to be back at school. And the teachers liked having him. I mean, he is the cutest kid in the class.

Amen

What he's singing:

"My God he was, my God He is, My God is always gonna be.

My Savior lives, my Savior loves, my Savior's always gonna be..."

(with apologies to Aaron Shust)




What the video didn't catch...Sam started trying to sing the song too. I'll try and catch that for you later. That's the prob with Random Acts...sometimes I don't get it on film...I have to take a mental snapshot, and just remember it !!

Piece by Piece

Sometime it really seems like a puzzle. A puzzle piece is the symbol for autism awareness, didn't you know? The last few days have been difficult with Myles. It seems like nothing we say gets through to him. I have been working a lot this week, and finally had the chance to spend a little one on one with Myles. Like most children, Myles craves attention. And he will use whatever means to get it.

The symbol for autism is a puzzle piece. But it is not a missing piece. We have all the pieces we need for Myles and Sam. And they are showing us the picture to put it together.

Piece by....

Myles and his first 100 piece puzzle (with a little help from mommy)

a little dirt

What is "Appropriate Play"? And who determines that? My experience as a father has been a different lesson than what most men learn. Teaching The Boys (yes, I always capitalize that) what is meant by appropriate play must first include teaching them what is not appropriate.

It is not appropriate (hate that word by the way) to look at the UPC on the back of books. Nor is "play" looking at a spinning wheel, or reflective material, or pushing a video cassette box around with your foot. And though it makes a little boy feel better to do those things...as a father...my job is to teach them...."Play".

By the way, I stink at this job. First I had to relearn "Play" myself. And what better way than with Hot wheels cars and dirt. Simple, really.

Take a bare spot in the yard, a spoon or butter knife, and carve out some roads. What boy could resist?

And he couldn't !!! And that is my Random Act.

Now...go enjoy playing with your children !!!

It's just a cup right?

So the other night we gave Sam his drink cup at dinner. Nothing new there, he has been drinking without a sippie cup for quite a while. As he got through with dinner, and finished his drink he began to play with his cup.


And he began to turn it in his hands, saying "A ....Buu....Di...E....Eff...G.....Ja...I...Mmm...."


Babbling you say? Just silly sounds from a boy not yet talking? Definitely not. You see, The Joyfullness and Sam has been practicing a little song. And it is a random act of cool...





It's just a cup, right ?

Happy Father's Day

Over the last year, I have really learned to appreciate what it means to be a father. I think that in the beginning, after the diagnosis, I was finding myself in disbelief. I thought that it was my fault.

Would I still be a father if I knew ahead of time how different things would be? The answer is a resounding "Yes". I take nothing for granted now.

Today I heard my 3 1/2 year old say the word "bumble" for bumblebee. I watched him imitate the hand motions to the song, giggling all the time. THAT was cool!

Like any father, I have my good days and bad. But there are more good. And the good is getting better everyday.

Ask yourself as a parent, how much do you take for granted? Open your eyes and enjoy the random acts of cool your children show you. It's there...look for it.

"I did it!"

No pics of this yet, but crazy cool thing happened the other morning. Joy has been trying to teach Myles to pull out his own clothes and dress himself.
She would say things like "Myles, go get some underwear from your bureau drawer." This usually takes him about half a second. But the other morning he took particularly long in his room.
We were just starting to wonder about him when who comes out with underwear, shirt and shorts on?? And might I add...coordinating colors ! Who cares if his shorts were on backwards....I mean, come on....who hasn't wanted to put their shorts on backwards at one time or another ???

Unassisted

Just look at that face. Not so long ago we wondered if he would ever smile. Now, with help from so many special teachers, therapists, and friends we are starting to see a change. Here he is on his scooter board, practicing therapy again. It's been great seeing the improvements with Sam. He is babbling more now and clearly saying some words. I could (and will in the future) go on and on about the random acts of cool Sam has shown me. But the other day I was completely blown away when I saw this...

The Kid can WRITE !!! Unassisted !!! OK, only once...but hey, THAT'S COOL !!!
Props to The Joyfullness for the hard-core encouragement. He couldn't have done it with out ya, baby!

by the numbers

I think it has been an amazing experience watching Myles learn to talk...to actually connect words into sentences...to ask for what he wants. And to watch him identify letters and numbers has been very encouraging. But when I first saw Myles write his name, I nearly did the big boo-hoo. To see your child make the connection between the spoken word and the written word is incredible !!

We take so much for granted in our lives. My boys have helped me appreciate every single moment. As easy as 1...2...

Happy Birthday

What a great birthday weekend! Got to hang with the "Brownies", eat grilled fish and veggies, and have homemade blueberry pie. And I got a "French Press" from The Joyfullness. What's so cool about a coffee maker for your birthday? Only this: That in all the hustle and bustle of day to day life, my wife can pick up on the little things that make me happy. That someone can know you almost better than you know yourself...that you can depend of their love everyday...well, that's just cool....

Letting your guard down

Today I took Samuel's baby guard down from his bed. No, he hasn't really needed it for a while. Yes, it still hurts a little to take it down. I doubt he will notice much except that it will be that much easier for him to jump out of bed...run down the hall...and climb up into our bed in the middle of the night.

For me, though, I guess it is a mixture of pride and sadness. Another step that leads him to adulthood, and the hope that he will never again need a guard rail.

Training Wheels

Neat thing today: Got to help Myles with his bike riding. He still is learning and uses training wheels. But today, I was able to let go and watch him pedal some on his own. Hard to believe that one day I will be handing him the keys to the car!